UMass Medical School experts to present on autism, disabilities at AUCD conference

Nov 13, 2015

By Ellen Moran

UMass Medical School experts will present on autism, oral health disparities in individuals with intellectual and developmental disabilities, and supporting siblings of children with mental health needs at the Association of University Centers on Disabilities (AUCD) annual conference Nov. 16-18 in Washington, D.C.

The theme of the conference is “Growing Leaders, Driving Change.” Presentations will include the Autism Insurance Resource Center at the Eunice Kennedy Shriver Center, the State Autism Roadmap needs assessment, and how research conducted in the AUCD’s centers is being used in practice and in setting policies.

November 15

Driving Change and Growing Leaders in Policy, Practice and Research

9 to 11:30 a.m.

Speakers and participants will explore the network’s relationship between research conducted in AUCD’s centers and how that research is used in practice and in federal and state policies

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  • Carol Curtin, MSW, PhD, Eunice Kennedy Shriver Center, UMass Medical School
  • Celia Feinstein, MA, Institute on Disabilities at Temple University
  • Sachin Pavithran, MS, Center for Persons with Disabilities at Utah State University
  • David Mank, PhD, Indiana Institute on Disability and Community
  • Julie Petty, Partners for Inclusive Communities
  • Parthenia Dinora, PhD,Partnership for People with Disabilities at Virginia Commonwealth University
  • David Rotholz, PhD, Center for Disability Resources

November 16

Addressing Cultural Barriers in Autism Screening: Lessons Learned from the 2015 SPHARC Peer-to-Peer Exchange

9 to 10:15 a.m., 10:30 to 11:45 a.m.

This poster presents the results from the SPHARC June 2015 Peer-to-Peer Exchange on Considering Culture in Autism Screening.

  • Elaine Gabovitch, MPA, Eunice Kennedy Shriver Center, UMass Medical School
  • Sarah Beth McLellan, MPH, senior program manager, CYSHCN, AMCHP
  • Julie Whyte, BA, MPH(c), Boston University School of Public Health

Interventions to Improve Access and Health Behaviors in Individuals with Intellectual/Developmental Disability: A National Resource for Oral Health

9 to 10:15 a.m., 10:30 to 11:45 a.m.

The presentation in this poster session will describe the process through which the systematic review, designed to uncover interventions to reduce oral health disparities in individuals with intellectual and developmental disabilities, was conducted along with the search strategy, interventions and outcomes measured.

  • Christine Clifford, MHP, Eunice Kennedy Shriver Center, UMass Medical School

Outcomes Measurement in the Context of the UN Convention on Rights of People with Disabilities

5:15 to 7 p.m.

The UN Convention on the Rights of People with Disabilities (CRPD) reflects an international consensus on the preservation of human and civil rights of individuals with disabilities. Monitoring the progress toward articles detailed in the CRPD can be accomplished using existing tools, such as the National Core Indicators (NCI). Researchers will present the areas in which NCI outcomes reflect the rights of the population with disabilities according to CRPD.

  • Alexandra Bonardi, OTR/L, MHA, Eunice Kennedy Shriver Center, UMass Medical School, and senior policy analyst, Human Services Research Institute

The Healthy People 2020 Roadmap for Massachusetts Children and Youth with ASC/DD: Understanding Needs and Measuring Outcomes

5:15 to 7 p.m.

The State Autism Roadmap needs assessment addresses, and makes recommendations to, the state priority published in the 2013 Massachusetts Autism Commission report. The recommendations will help develop a comprehensive statewide approach to addressing the needs of Massachusetts children and youths with autism and developmental disorders by implementing consistent statewide data collection practices.

  • Elaine Gabovitch, MPA, Eunice Kennedy Shriver Center, UMass Medical School

The Autism Insurance Resource Center; Facilitating Access to Evidence-Based Treatment

5:15 to 7 p.m.

This poster describes the work of the Autism Insurance Resource Center (AIRC), which is housed with INDEX, the Eunice Kennedy Shriver Center's disability informatics resource at UMass Medical School.

  • Amy Weinstock, MA, director of the Autism Insurance Resource Center, Eunice Kennedy Shriver Center, UMass Medical School

November 17

Siblings of People with Disabilities

10:30 to 11:45 a.m.

This session will present “Exploring the Current Realities and Dreams for the Future of Siblings in Pennsylvania and Beyond,” “Understanding the Sibling Movement: A Generation of Leaders and Advocates,” and “Supporting Siblings of Children with Mental Health Needs.”

  • Celia Feinstein, MA, co-executive director, Institute on Disabilities, UCEDD
  • Shea Tanis, PhD, Coleman Institute, Boulder, Colorado
  • Emily Rubin, MA, Eunice Kennedy Shriver Center, UMass Medical School

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