Sibling Support Research
The Sibling Support Program: A Family-Centered Mental Health Initiative was developed at the Eunice Kennedy Shriver Center of the UMass Chan Medical Schooll. The project was implemented at Cambridge Health Alliance (CHA) as an IRB-approved research study from 2011-2024. The research study explored the impact of mental illness on typically developing siblings and caregivers of children with psychiatric needs. Currently, the program is offered free of charge, as a non-research initiative, to families across the country.
Study goals were:
- to increase resiliency and mitigate the trauma commonly experienced by siblings of children admitted for psychiatric hospitalization
- to build skills, competency and confidence among parents
- to help restore family stability post-discharge
- to build capacity among clinicians that practice family-centered mental health care
Interventions included psycho-educational groups for caregivers, and sibling support groups for children growing up alongside the patient. Participants completed surveys following the intervention to report on knowledge learned, satisfaction level, and behavioral change anticipated by the participant. Results suggested that a child’s mental illness can be traumatic for family members, and that sharing stories can alleviate the stress and anxiety related to living in a home with a child with mental illness. Over 2,400 participants were enrolled in this innovative program that utilized parent mentors and trainees across disciplines to deliver interventions, with high satisfaction scores among participants. The program served as a training rotation for CHA psychiatry residents through Harvard Medical School.
Sibling Support Program publications
- Rubin, E. (2024). “How To Create an Evidence-Based Program When The Evidence Does Not Yet Exist?” In M.J. Maranda and M.J. Lee (eds.), Perspectives on Evidence-Based Policy in Human Services. Cambridge Scholars Publishing.
- Feriante, J., Shayani, S., Lauer, E., Pressman, A., Rubin, E. (2022). Sibling Support Program: A Novel Peer Support Intervention for Parents, Caregivers and Siblings of Youth Experiencing Mental Illness. Healthcare 2022, 10 (5), 908.
- Haines, C., Newman, A., & Rubin, E. (2022). Mental Health Trainees and Families Adapt to Virtual Platforms for Sibling Support During COVID-19. Professional Development: The International Journal of Continuing Social Work Education’s Special Edition: Using Virtual Platforms to Provide Learning and Engagement Opportunities during a Pandemic, 25:2.
- Damodaran, S., Huttlin, E. Lauer, E. & Rubin, E. (2019). Academic Psychiatry. Mental Health Trainee Facilitation of Sibling Support Groups: Understanding its Influence on Views and Skills of Family-Centered Care.
- Rubin, E., Ostrowsky, L., Janopaul-Naylor, E., Sehgal, P., Cama, S., Tanski, E., & Curtin, C. (2018). The sibling support demonstration project: A pilot study assessing feasibility, preliminary effectiveness, and participant satisfaction. Adolescent Psychiatry, 8(1), 48-60.