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Presentations & Publications

Publications

Peer-Reviewed Journal Articles

Lauer E, McCallion P. Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data. Journal of Applied Research in Intellectual Disabilities. Volume 28, Issue 5, pages 394–405. September 2015.

Heslop P, Lauer E, Hoghton M. Mortality in People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities. Volume 28, Issue 5, pages 367–372. September 2015.

Wilkinson J, Lauer E, Greenwood NW,  Freund KM,  Rosen AK. Evaluating representativeness and cancer screening outcomes in a state department of developmental services database. Intellectual and Developmental Disabilities. April 2014 52. April 2014.

Dreyfus D, Lauer E, Wilkinson JE. Characteristics associated with bone mineral density screening in a sample of adults with intellectual disabilities. Journal of the American Board of Family Medicine. January 1 2014 27. January 2014.

Lauer E, Bonardi A, Staugaitis S. Meeting the needs of patients with learning disabilities. British Medical Journal, 346, f3421. doi:10.1136/bmj.f3421. May 2013. 

Wilkinson JE, Lauer E, Freund KM, Rosen AK. Individual and system-level characteristics associated with mammography in women with intellectual disabilities. Journal of the American Board of Family Medicine, November 1 2011, 24. November 2011.

Books & Chapters

Staugaitis S, Lauer E. Using Data as a Quality Tool in Developmental Disabilities. ISBN-13: 978-1517157388. Createspace. May 2016. https://www.createspace.com/5713504

Staugaitis S, Lauer E. Mortality Review and Reporting in Developmental Disabilities. ISBN-13: 978-1514306413. Createspace. May 2016. https://www.createspace.com/5554025

Lauer E, Heslop P, Hoghton M.  Identifying and addressing disparities in mortality: US and UK perspectives. In: C. Hatton (Ed.), Health Disparities in Intellectual Disabilities, Vol 14 of International Review of Research in Developmental Disabilities.  Elsevier, Academic Press.  2015. 

Editorials

Lauer E, Bonardi A, Staugaitis S. (2013). Re: Meeting the needs of patients with learning disabilities. BMJ. July 11, 2013. http://www.bmj.com/content/346/bmj.f3421/rr/653254

Public Reports

Clifford C, Lauer E, Dutra C, Pirog R. Fostering Social Inclusion and Community Engagement. Whitepaper. 2016. https://shriver.umassmed.edu/programs/cdder/social-inclusion

Gabovitch E, Lauer E, Dutra C. Massachusetts Healthy People 2020 Autism Roadmap Report: Understanding Needs & Measuring Outcomes. 2016. https://shriver.umassmed.edu/research/massachusetts-healthy-people-2020-autism-roadmap-report-understanding-needs-measuring-outcomes/

Lauer E. Massachusetts Department of Developmental Services Annual Mortality Report 2002, 2003, 2004, 2005, 2006, 2007, 2008, 2009, 2010-11, 2012-13. http://www.mass.gov/eohhs/consumer/disability-services/services-by-type/intellectual-disability/newsroom/quality-assurance/mortality-reports.html

Bonardi A, Lauer E. Developing an Operational Definition of Intellectual Disability for the Purpose of National Health Surveillance. November 2011. https://shriver.umassmed.edu/programs/cdder/health-surveillance-adults-intellectual-disability

Bonardi A, Lauer E, Noblett C, Taub S, Bershadsky J. Compendium of Health Data Sources for Adults with Intellectual Disabilities. November 2011. https://shriver.umassmed.edu/programs/cdder/health-surveillance-adults-intellectual-disability

Bonardi A, Lauer E, Mitra M, Bershadsky J, Taub S, Noblett C. Recommendations for Expanding Surveillance of Adults with Intellectual Disability in the United States. 2011. https://shriver.umassmed.edu/programs/cdder/health-surveillance-adults-intellectual-disability

Lauer E. Analysis of Unexpected Hospital Visits in Adults with Intellectual Disabilities served by MA DDS. June 2008.

Presentations

Clifford C, Lauer E. Social Inclusion Policy-Opportunities for Individuals to Become Fully Engaged Members of the Community. American Association of Intellectual and Developmental Disabilities Conference.  Hartford, CT, June 27, 2017

Tummino L, Ross J, Lauer E. Sarah Taub/NCI Webinar Series: Friendship and Life Outcomes for Adults With Intellectual and Developmental Disabilities. Online, November 3, 2016.

Lauer E. Perspectives from longitudinal mortality for people with intellectual and developmental disabilities in the U.S. American Public Health Association Annual Meeting. Denver, CO, October 29 – November 2, 2016.

Lauer E, Clifford C. Massachusetts Resources on Supporting People Who Are Aging with Intellectual Disability. Living Longer:  Aging with Intellectual Disability. Framingham, MA, September 23, 2016.

Lauer E. Examining mortality over a decade for people with I/DD in the U.S.  International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2016 World Congress. Melbourne, Australia, August 2016.

Heslop P, Lauer E, Ouellette-Kuntz H, Hoghton M. Rountable Discussion. Mortality of people with IDD: Country reports on current work.  International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2016 World Congress. Melbourne, Australia, August 2016.

Heslop P, Lauer E, Ouellette-Kuntz H, Hoghton M. Rountable Discussion. Mortality of people with ID: Future collaborative work.  International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2016 World Congress. Melbourne, Australia, August 2016.

Lauer E, Tummino L, Clifford C. Fostering social inclusion and community engagement: Massachusetts’s Creating Our Common Wealth Initiative, Reinventing Quality.  Baltimore, MD, August 2, 2016.

Lauer E, Clifford C, Swoboda P, Morrow-Gorton J, Bucci R. Emergency Department Use for People with Intellectual and Developmental Disabilities. 143rd American Public Health Association Annual Meeting and Exposition. Chicago, IL, October 31 – November 4, 2015.

Lauer E, Lauer EA. National Healthcare Utilization Patterns Among People with Disabilities. 143rd American Public Health Association Annual Meeting and Exposition, Chicago, IL, October 31 – November 4, 2015.

Clifford C, Bonardi A, Witten, M.H., Fox M. Systematic review of oral health and people with IDD.  American Academy of Developmental Medicine and Dentistry (AADMD) annual meeting, Princeton, NJ, 2014.

Lauer E, Bonardi A. Mortality Surveillance in Adults with Intellectual Disability: Findings from the United States. 2014 IASSIDD Europe Regional Congress, Vienna, Austria, July 15, 2014.

Lauer E, Heslop P. Coding on cause of death certificates – issues for people with intellectual disability from the US and England. 2014 IASSIDD Europe Regional Congress, Vienna, Austria. July 16 2014.

Grossman G,  Lauer E. Medication use in adults with intellectual/developmental disabilities living in community homes and state efforts to reduce overuse prevention, protection & advocacy. National Home and Community Based Services Conference, Arlington, VA, 2013.

Houtenville A, Lauer E, Reichard A, Bonardi A. Health of people with intellectual disabilities: Can it be surveilled through existing data? The 141St Annual Meeting and Expo of the American Public Health Association, Boston, MA, 2013.

Bonardi, A. Assistive technology at the Shriver Center: An overview and perspectives. EU Science: Global Challenges, Global Collaborations Conference, Brussels, Belgium, 2013.

Bonardi A, Lauer E, Hill C, Kilpatrick L. Health surveillance in the population with intellectual disability: Case definition in state level data. The 141St Annual Meeting and Expo of the American Public Health Association, Boston, MA, November 2-6, 2013.

Houtenville AJ, Lauer EA, Reichard A, Lauer E, Bonardi A.  Health of people with intellectual disabilities: Can it be surveilled through existing data? American Public Health Association 141st Annual Meeting & Expo.  Boston, MA, November 2-6, 2013.

Bonardi A, Clifford C. Interventions to reduce oral health disparities between adults with I/DD and the general population: A systematic review. The American Academy of Development Medicine and Dentistry Annual Meeting, Mesa, AZ, 2013.

Lauer E.  Understanding health inequalities of people with learning disabilities through surveillance: approaches from the US. University of Bristol, Bristol, UK, March 13, 2013.

Lauer E.  The power of applied research: Forging change in public health. University of Bristol, Bristol, UK, March 14, 2013.

Lauer E. Mortality surveillance in people with learning disabilities in the US: Impact and implications for future research. University of Bristol, Bristol, UK, March 25, 2013.

Lauer E. The experience of mortality review and reporting in the US – what can we learn? Presented at the conference Improving Health and Lives: Three Years On, Holiday Inn Bloomsbury, London, UK, March 20, 2013.

Bonardi A. Definition and case finding for health surveillance in the US population with intellectual disability. 2012 International Association for the Scientific Study of Intellectual Disability (IASSID) World Congress, Halifax, Nova Scotia, 2012.

Bonardi A. Massachusetts department of developmental services medication review. National Association of State Directors of Developmental Disabilities Services (NASDDDS) Reinventing Quality Conference Baltimore, MD, 2012.

Noblett-Dutra C, Bonardi A, Lauer E, Oxx S. An intervention to monitor and reduce fall rates among adults with intellectual disability 2012 International Association for the Scientific Study of Intellectual Disability (IASSID) World Congress, Halifax, Nova Scotia, 2012.

Bonardi A, Grossman G, Lauer E.  Massachusetts Department of Developmental Services Medication Review. NASDDDS Reinventing Quality, Shrewsbury, MA, August 7, 2012.

Bonardi A, Lauer E.  Operational Definition of Intellectual Disability: Getting it right for national health surveillance. Health Frontier for Intellectual Disabilities Conference. Association of University Centers on Disabilities and National Center on Birth Defects and Developmental Disabilities of the Centers for Disease Control and Prevention. May 23, 2011.

Bonardi A. Application of failure modes and effects analysis in the delivery of custom assistive technology: A clinician’s perspective Invited Presentation at the US – Turkish Workshop on Assistive Technology, Yeditepe University, Istanbul, Turkey, 2011.

Baldor R, Bonardi A. The Massachusetts guidelines for preventive screening for adults with developmental disability. Paper Presented at the Annual Conference of the American Association of Intellectual and Developmental Disability, Providence, RI. 8. 2010.

Bonardi A. Identifying and reducing the risk of falls. Conference of the National Association of State Directors of Developmental Disabilities (NASDDDS), Baltimore, MD, 2010.

Iezzoni L, Lauer E. Database use and development. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Lauer E. Health Surveillance of Adults with Intellectual Disabilities. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Bonardi A. The balance between choice and control: Risk management in New Zealand intellectual disability services. Fulbright New Zealand, Wellington, NZ. Ian Axeford Fellowships in Public Policy, Wellington, New Zealand, 2009.

Lauer E, Understanding Health Risks for Adults with I/DD: Findings from Massachusetts. Northeast Region Meeting Pre-Conference Workshop on Primary Care Education and Research on Care of Adults with Intellectual and Developmental Disabilities, 2009 Society of Teachers of Family Medicine, Rye Brook, NY, October 29, 2009.

Bonardi A, Lauer E, Grossman G, Oxx S. Evaluation of the DMR Health Promotion and Coordination Initiative.  Clinical and Population Health Research Retreat, University of Massachusetts Medical School, Shrewsbury, MA, December 2005.

Abstracts and Posters

Oxx S, Bruner-Canhoto L, Clifford C, Lauer E. Massachusetts Innovative Action to Support those Aging with an Intellectual and Developmental Disability. American Association of Intellectual and Developmental Disabilities Conference. Hartford, CT, June 27, 2017.

Rubin E, Lauer E, Baigell L, Venter J, Ostrowsky L, Janopaul-Naylor E, Barnett G, Mackenzie J, Patel N, Kotlar Y, Pressman A. Sibling Support Program: A Family-Centered Mental Health Initiative. UMCCTS Community Engagement and Research Symposium. Worcester, MA, March 3, 2017.

Lauer E, Morrow-Gorton J. Understanding Aspiration and Associated Pneumonia in People with I/DD.  International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2016 World Congress, Melbourne, Australia, August 2016.

Noblett-Dutra C, Gabovitch E, Lauer E, Jiang R, Whyte J. Moving beyond Google Translate: What Massachusetts families from diverse cultures need for effective autism services and supports. 2016 Association of Maternal & Child Health Programs (AMCHP) Annual Conference. Washington, D.C., April 2016.

Rubin E, Lauer E, Murray T, Pressman A, Ostrowsky L, Janopaul-Naylor E, Sehgal P, Cama S, Yapo S,  Noy G, Miller LJ, Kelleher D, Kotlar Y, Pattz H, Baigell L. Sibling Support Program: A Family-Centered Mental Health Initiative. Cambridge Health Alliance Academic Poster Session. Cambridge, MA, April 4, 2016.

Rubin E, Lauer E, Murray T, Pressman A, Ostrowsky L, Janopaul-Naylor E, Sehgal P, Cama S, Yapo S,  Noy G, Miller LJ, Kelleher D, Kotlar Y, Pattz H, Baigell L, Goldstein J, Ryan C, Sinclair C, Buonopane R, Haagen KT, Cameron A, Rines-Toth L. Sibling Support Program:  A Family-Centered Mental Health Initiative, March 31, University of Massachusetts Medical School Psychiatry Research Day. Worcester, MA, March 31, 2016.

Lauer E, Simpson May G, Mitra M. Utilizing Massachusetts Medicaid data to inform health service utilization, expenditures, and prevalence of comorbid conditions for people with intellectual disabilities. 143rd American Public Health Association Annual Meeting and Exposition. Chicago, IL, October 31 – November 4, 2015.

Dutra C, Bonardi A, Lauer E. Developing the evidence for falls-prevention interventions in people with ID living in community settings. 143rd American Public Health Association Annual Meeting and Exposition. Chicago, IL, October 31 – November  4, 2015.

Gabovitch E, Noblett-Dutra C, Lauer E. The Healthy People 2020 Roadmap for Massachusetts Children & Youth with ASD/DD Understanding Needs and Measuring Outcomes.  Autism CARES Meeting, Boston, MA, July 2015.

Bonardi A, Dutra C, Lauer E. Impact of a Fall Injury Prevention Program Among People With Intellectual Disability. American Association of Intellectual and Developmental Disabilities Conference. Louisville, KY, June 1 -4 2015.

Clifford C, Bonardi A, Harger N, Holder M. Uncovering the evidence:  systematic review of interventions to reduce oral health disparities between adults with intellectual disability and the general population. The 141St Annual Meeting and Expo of the American Public Health Association, Boston, MA, November 2-6, 2013.

Noblett-Dutra C.  Computer-based training for improving caregiver support of preventive health screenings in adults with intellectual disabilities. Poster presented at the 141St Annual Meeting and Expo of the American Public Health Association. Boston, MA, November 2-6, 2013.

Lauer E, Bonardi A. Utility of Mortality Surveillance in Adults with Intellectual and Developmental Disabilities. American Public Health Association 141st Annual Meeting & Expo. Boston, MA,  November 2-6, 2013.

Lauer E, Bonardi A.  Patterns of prescription drug use in adults with intellectual disabilities. Journal of Intellectual Disability Research. (56) 7-8. Presented at IASSID Halifax. Halifax, Nova Scotia, Canada, July 2012.

Noblett-Dutra C, Bonardi A, Lauer E, Oxx S. An intervention to monitor and reduce fall rates among adults with intellectual disability. Presented at IASSID Halifax.  Journal of Intellectual Disability Research. Halifax, Nova Scotia, Canada, July 2012.

Bonardi A, Lauer E, Taub S, Bershadsky J, Noblett C. Public Health Surveillance of Adults with Intellectual Disability: Building the information and knowledge base. AUCD 2011 Conference. Crystal City, VA, November 6-9, 2011.

Wilkinson JE, Lauer E, Freund KM, Rosen AK. Factors associated with mammography for women with intellectual disabilities. 38th NAPCRG Annual Meeting, Seattle, WA, November 13-17, 2010.

Bonardi A, Noblett C, Lauer E, Oxx S, Grossman G.  Preventing Falls in People with Intellectual & Developmental Disabilities: The S.T.O.P. Falls Pilot Study in Massachusetts. American Association on Intellectual and Developmental Disabilities 134th Annual Meeting in Providence, RI, June 2010.

Jones L, Lauer E, Quan C, Schneider S, Foxenberg R, Singal M. Methodology for Critical Evaluation of Experimental Safety Data for Use in Human Risk Assessment. Abstract ID 2311.  An official Journal of the Society of Toxicology, Volume 114, Number S-1, March 2010.

Lauer E, Ohman-Strickland PA. Medication Occurrences in Community Programs for Adults with Intellectual Disabilities. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Wilkinson JE, Lauer E, Freund KM, Rosen AK. Factors associated with mammography for women with intellectual disabilities. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Lauer E, Staugaitis S. Healthy People 2010 Mortality Objectives: Use of Benchmarks to Help Evaluate the Health Status of Individuals with Mental Retardation in Massachusetts. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Bonardi A, Noblett C, Lauer E, Oxx S, Grossman G.  Preventing Falls in People with Intellectual & Developmental Disabilities: The S.T.O.P. Falls Pilot Study in Massachusetts. Northeast Region Meeting Pre-Conference Workshop on Primary care research agenda for people with intellectual/developmental disabilities workshop, 2010 Society of Teachers of Family Medicine, Hershey, PA, October 2010.

Wilkinson JE, Bowen D, Freund K, Rosen A, Lauer E. Determinants of mammography in women with intellectual disabilities. North American Primary Care Research Group. 37th NAPCRG Annual Meeting, West Montreal, Quebec, Canada, November 14-18, 2009.

Wilkinson JE, Bowen D, Freund K, Rosen AK, Lauer E. Evaluating cancer screening outcomes in a Department of Mental Retardation database.  American Society of Preventive Oncology 33rd Annual Meeting, Tampa, FL, March 8-10, 2009.

Lauer E, Staugaitis S, Noblett C, Bonardi A. Development and Evaluation of Data Utilization Strategies for Critical Incident Data. 3rd Annual Commonwealth Medicine Academic Conference, Shrewsbury, MA, April 2009.

Wilkinson JE, Freund K, Bowen D, Lauer E. Evaluating cancer screening outcomes in a Department of Mental Retardation (DMR) database. Society of Teachers of Family Medicine Northeast Region Meeting, Baltimore, MD, October 30-November 2, 2008.

Wilkinson JE, Freund K, Bowen D, Lauer E. Evaluating cancer screening outcomes in a Department of Mental Retardation (DMR) database. North American Primary Care Research Group, 36th Annual Meeting, Rio Grande, PR, November 15-19, 2008.

Lauer E, Staugaitis S, Bonardi A. Analyzing Critical Incident Data to Assess Risk and Improve Services for Adults with Intellectual Disabilities, Commonwealth Medicine Academic Conference, Shrewsbury, MA, October 2007.

Bonardi A, Lauer E. The DMR Health Promotion and Coordination Initiative: Evaluation and the development of computer based training. Commonwealth Medicine Academic Conference, UMMS, Shrewsbury, MA, October 2007.

Staugaitis S, Lauer E. Using Mortality Analysis to Guide Quality Improvement by a State Agency:  A Simple and Practical Approach to Using Data as a Performance Management Tool ~ Mammography Screening.  Commonwealth Medicine Clinical and Population Health Research Retreat, UMMS, Shrewsbury, MA, June 2007.

Lauer E, Staugaitis S. Healthy People 2010 Mortality Objectives: Use of Benchmarks to Help Evaluate the Health Status of Individuals with Mental Retardation in Massachusetts.  Commonwealth Medicine Academic Conference, UMMS, Shrewsbury, MA, April 2006.

Bonardi A, Lauer E, Grossman G, Oxx S. Evaluation of the DMR Health Promotion and Coordination Initiative.  Clinical and Population Health Research Retreat, University of Massachusetts Medical School, Shrewsbury, MA, December 2005.

Bonardi A, Saunders E, Grossman G, Oxx S.  Enhancing Health Supports in Massachusetts: The DMR Health Promotion and Coordination Initiative. 2004 AAMR conference, Philadelphia, PA. 2004.

Mahon K, Serna RW, Porter AF, Smith ER, Warecki EA, Lockerbie AAM, Saunders E. Teaching Visual Stimulus Same/Different Judgments to Children with Severe Intellectual Disabilities: Investigating the Efficacy of the StartMatching! Curriculum. 37th Annual Gatlinburg Conference On Research & Theory in Intellectual & Developmental Disabilities San Diego, California, 2004.

Mackay, HA, Mahon K, Warecki EA, Porter AF, Smith ER, Lockerbie AAM, Saunders E.  Examining Emergence of Numeral Sequences in Children with Developmental Disabilities. 37th Annual Gatlinburg Conference On Research & Theory in Intellectual & Developmental Disabilities San Diego, CA, 2004.

Saunders E, Staugaitis S. Analyses of Annual Mortality Data for the DMR, Clinical and Population Health Retreat, UMMS, Worcester, MA, December 2004.

Bonardi A, Saunders E. Analysis of Diabetic Medications and Supplies Prescribed to the Community-based Adult DMR Population, Clinical and Population Health Retreat, UMMS, Worcester, MA, December 2004.

Saunders, E, Richman, A, Lauer, EA, Deutsch, CK.  Frontonasal-maxillary dysmorphology in schizophrenia: Palatal midline anomalies among probands and their relatives. International Congress on Schizophrenia Research Meeting, Colorado Springs, CO, March 2003.

Deutsch CK, Levy DL, Lauer EA, Krastoshevsky O, Saunders E, Coleman MJ, Price SF, Matthysse S, Holzman PS. Coherence of Co-familial Phenotypes in Schizophrenia: Craniofacial Dysmorphology, Thought Disorder, and Smooth Pursuit Eye Movements. International Congress on Schizophrenia Research Meeting, Colorado Springs, CO, March 2003.

Deutsch CK, Saunders E, Lauer EA, Joseph R, Tager-Flusberg H.  Quantitative assessment of craniofacial dysmorphology in autism and SLI. Proceedings, International Meeting for Autism Research, Orlando, FL, November 2002.

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