- Child and Adolescent NeuroDevelopment Initiative (CANDI)
- Center for Autism and Neurodevelopmental Disorders (CANDO)
- Center for Developmental Disabilities Evaluation and Research (CDDER)
- Health Surveillance for Adults with Intellectual Disability
- Oral Health Disparities
- MA DDS Prevention Conference
- Preventive Health Screenings for Adults with Intellectual Disabilities
- Mortality Review
- Quality Assurance Reports
- Webinars
- Pica
- Constipation and Bowel Obstructions
- Substance Abuse in the Workplace
- Dysphagia, Aspiration, and Choking
- Oral Health Practices
- DDS Safe Transportation of People in Wheelchairs
- Falls Prevention and Intervention Strategies
- Human Rights Training for Self-Advocates
- Human Rights: What Families Need to Know
- Identifying, Healing, and Preventing Pressure Ulcers
- MAP Training Resources
- Adjunct RIA Training Materials
- Clozapine Therapy Training
- DDS MAP Training Resources
- DMH/DCF MAP Training Resources
- Instructions for Virtual Certification Testing
- MAP Curriculum and Adjunct Training Materials
- MedSoft© Version 7.0
- Responsibilities in Action Curriculum and Training Materials
- Semiannual MAP Trainer Webinar Fall 2017
- Semiannual MAP Trainer Webinar Fall 2019
- Semiannual MAP Trainer Webinar Spring 2018
- Spring 2020 MAP Trainer Webinar
- TestMaster Universe
- Warfarin Sodium Therapy Training
- Mandated Reporting of Abuse and Mistreatment
- Recognizing and Reporting Financial Abuse
- Widening the Circle: Expanding Opportunities for Friendship
- Risk Management in Developmental Disabilities
- Understanding and recognizing dementia in IDD
- Aging with Intellectual and Developmental Disability Trainings
- Adapting to Age-Related Changes in the Home, Day Program, and Community
- Aging and Disability Resource Consortia
- General Aging
- Dementia and IDD
- Launching a Memory Café
- Life Sustaining Treatment Policy
- Guardianship and Aging in Intellectual Disabilities Part I
- Guardianship and Aging in Intellectual Disabilities Case Studies Part II
- Massachusetts Medical Orders for Life Sustaining Treatment (MOLST)
- End of Life Definitions
- Five Wishes
- Fostering Social Inclusion and Community Engagement
- Presentations & Publications
- Our Team
- Child and Adolescent Needs and Strengths (CANS) Program
- Division of Neuroinformatics
- Healthy People/Healthy Communities
- INDEX
- Insurance Resource Center for Autism & Behavioral Health
- Laboratory for Equity in Autism Dissemination (LEAD) Lab
- Leadership Education in Neurodevelopmental and Related Disabilities (LEND)
- Neurobehavioral Science and Neurogenetics
- Pathways to Inclusive Health Care Program
- Sibling Support
DDS Preventive Health Screenings for Adults with Intellectual Disabilities
Recognizing that regular preventive health screenings can help people with ID remain healthy and have a good quality of life, CDDER and the Massachusetts Department of Developmental Services (DDS) developed, piloted, and implemented systems and tools to enhance health care quality and communication. The centerpiece of this initiative was the dissemination of the MA DDS preventive health screening guidelines for adults with ID. These tools are for use by clinicians, staff, individuals, and families to understand the preventive health screenings that are recommended by age and diagnoses.
These guidelines were last updated in 2022.
Tools
Preventive Health Screening Recommendations
A How To Guide for using DDS’s Preventive Health Screening tools.
Let’s Get Started (PDF)
Preventive Health Screening Checklists
This is a summary checklist for use by the self-advocate, family member, or support provider to help guide the discussion with the Health Care Provider (HCP) about which screening tests are recommended for a particular individual. This form should be completed prior to the individual’s annual visit. Staff should review the individual’s health record and check off preventive screenings that are likely due based on age, sex, and risk factors. These screenings can then be discussed with the HCP at the annual visit.
Preventive Health Screening Checklists are organized by sex (male or female) and age.
Female Overview Sheet: one-page overview of recommended screenings
Female Age 19-39 (Word)
Female Age 19-39 (PDF)
Female Age 40-64 (Word)
Female Age 40-64 (PDF)
Female Age 65-80 (Word)
Female Age 65-80 (PDF)
Male Overview Sheet: one-page overview of recommended screenings
Male Age 19-39 (Word)
Male Age 19-39 (PDF)
Male Age 40-69 (Word)
Male Age 40-69 (PDF)
Male Age 70-80 (Word)
Male Age 70-80 (PDF)
Guidance for Transgender Individuals
Educational Videos
Individuals should see their Health Care Provider at least once a year and get recommended health screenings. This can lead to a long and healthy life! These short videos are for self-advocates and families. These videos explain preventive health screenings, show how to advocate for yourself with the Health Care Provider, and give tips for preparing for the annual health visit and for screening tests.
What Are Preventive Health Screenings and Why are They Important to Me?
How To Advocate with Your Healthcare Provider for Preventive Screenings
Are Preventive Health Screenings Right For Me?
Ongoing Efforts
CDDER is part of the American Association on Intellectual and Developmental Disabilities (AAIDD) working group on preventive health screening guidelines to develop a set of consistent guidelines across the United States.
Health communication tools developed by CDDER have been modified for use in other state systems.